2025 ECTS共识建议:罕见骨矿物质疾病年轻患者的过渡护理

2025-05-09 Calcif Tissue Int 发表于上海

本文主要为RBMCs 年轻患者的TC提供循证共识的建议,重点关注无缝过渡和患者授权的最佳实践。

中文标题:

2025 ECTS共识建议:罕见骨矿物质疾病年轻患者的过渡护理

英文标题:

Transition Care for Young Persons with Rare Bone Mineral Conditions: A Consensus Recommendation from the ECTS Rare Bone Disease Action Group

发布机构:

发布日期:

2025-05-09

简要介绍:

过渡护理(TC)对于患有罕见骨和矿物质疾病(RBMCs)的年轻人至关重要,因为他们从儿科转向成人医疗保健。有效的TC可防止护理中断并支持医疗和社会心理需求。本文主要为RBMCs 年轻患者的TC提供循证共识的建议,重点关注无缝过渡和患者授权的最佳实践。

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2025 ECTS共识建议:罕见骨矿物质疾病年轻患者的过渡护理.pdf
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